Well, some things have taken place latley that have made us push ahead and demand the best for Caleb. We have him seeing a new Dr, changed some medicines, got him in with a therapist again. We’ve tried thereapy before, and got no where with it because Caleb wouldn’t open up. He seems to really like his new therapist and they seem to get along well, so let’s hope it’s a match. We are also persuing family therapy in hopes to bring us closer in understanding each other. Every day is a constant struggle for Caleb and us as a family. We may be able to predict certain things that will trigger him, however, each new day can also mean new triggers. It could be a certain smell, the way a certain item of clothing feels on his skin, or maybe just too much stimulation. Unless you have peronally seen this or live with it everyday, you may be able empathize, but not fully understand what a toll it takes on everybody involved. I’ve had people ask me often, if Caleb will “grow out of this?”. No, he will not grow out of it, his brain is wired differently, and he will always see things and interpret things differently. That doesn’t make him a” bad person, or a spoiled kid trying to get his way”. He is unique, energettic and very much his own person. He CAN live a productive life, but will always need extra encouragement in life. I was told by his Dr, that I ” will never have the bond with Caleb that I have with the other two”. It doesn’t mean I won’t have a bond with him, it just means it will have to be on his terms. I have to admit it hurt to hear that, but I also understand it’s just the way it is, and I’m thankful to be able to be in his life, and have any type of bond with him. I just really wish that more people could be understanding and more compassonaite , not just with my family, but with all families that struggle with this day to day. When you are in a store and see a child throwing a tantrum, and the parent looking frazzled and exhausted, please don’t jump to the conclusion that the parent is not a good parent and their child is a brat, you don’t know them or their story. Instead, try kind smile of encouragement to the parent, you never know, that might be just what that parent needs at that very moment to gather the strength to get the child through the meltdown. It’s a big deal for us as parents to take these children out in the “real world”, knowing that a meltdown could happen at any momemt. now, you might be thinking, ” well if it’s that bad, just stay home with the child. We can’t do that, these children need to be out and experience things, and it is our jobs to try to teach them how to adjust in the “real world”. Would it be easier to just stay home and not disturb their routine, yes it would be, but it’s not realistic. Sooner or later, these children need to try to spread their wings, little by little. If we didn’t fight for our children, people would judge and think we were awful parent’s, but yet when we do fight, people still judge and think we are mean and nasty. Please remember, none of us chose this life, it chose us, and we are fighting for our children, and will continue to fight for them, it’s just what we do.
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